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Amyotrophic lateral sclerosis (ALS) is characterized by the degeneration of both upper and lower motor neurons, which ultimately leads to muscle weakness, atrophy, spasticity and contractures.1 ALS typically manifests in the 50–60 years age range, although familial cases may present in late adolescence or early adulthood.2 The time from the first symptom to diagnosis is approximately 10–16 […]

Marianne de Visser, EAN 2019 – Neurology and palliative care

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Published Online: Jul 4th 2019

EAN Secretary General and one of the newest additions to our European editorial board, Marianne de Visser (Amsterdam University Medical Centre, Netherlands) discusses the overarching theme of several of her presentations at EAN 2019 – neurology and palliative care.

Questions
1. What are the major unmet needs in palliative care for people with neurological diseases? (0:04)
2. What are the essential features of successful advance care planning (ACP)? (1:14)
3. What have you learned from your study in the tertiary amyotrophic lateral sclerosis centre in Amsterdam in terms of optimising ACP? (2:06)
4. What did you learn from patients with Parkinson’s disease about their desire for information on ACP? (4:05)
5. How else can we improve the palliative care of people with neurological diseases? (5:27)

Speaker disclosure: Marianne de Visser has nothing to disclose in relation to this video interview.

Filmed at the 5th Congress of the European Academy of Neurology (EAN), Oslo, Norway, June 2019.

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