Faculty & Disclosures
Prof. James Wheless
University of Tennessee Health Science Center, Memphis, TN, USA
Prof. James Wheless is professor and chief of paediatric neurology and the Le Bonheur chair in paediatric neurology at the University of Tennessee Health Science Center (UTHSC) in Memphis, USA. He also serves as director of the Neuroscience Institute and the Le Bonheur Comprehensive Epilepsy Program for the Le Bonheur Children’s Hospital (LCH), and is an adjunct clinical faculty member in the Department of Pediatric Medicine at St. Jude Children’s Research Hospital. read more
Prof. Wheless is an experienced neurologist and researcher whose research is focused on paediatric anti-epileptic drug development, the ketogenic diet, epilepsy surgery and non-invasive brain mapping (transcranial magnetic stimulation, magnetoencephalography). He is a diplomat of the American Board of Pediatrics and the American Board of Psychiatry and Neurology, with special qualifications in child neurology, clinical neurophysiology and epilepsy. Prof. Wheless is a fellow of the American Academy of Pediatrics, the American Academy of Neurology and the American Epilepsy Society. He is a member of the editorial board of the Journal of Child Neurology, and serves as a reviewer for a number of journals including Neurology, Epilepsia, Pediatrics and Epilepsy & Behavior. Prof. Wheless has authored more than 830 chapters, articles and abstracts on childhood convulsive disorders, and is the editor of four textbooks on epilepsy. He lectures widely on paediatric epilepsy and oversees an interdisciplinary team of paediatric specialists that treat patients with epilepsy.
Prof. James Wheless discloses: Grants/research support from Aucta, AveXis, Envision, EpiWatch, Marinus Pharmaceuticals, Neurelis Inc., Neuro Event Labs, Neurocrine Biosciences, NeuroPace, SK Life Sciences, Stoke Therapeutics, UCB, Xenon Pharmaceuticals and Zogenix. Consulting fees from Azurity Pharmaceuticals, BioMarin Pharmaceutical Inc., Eisai, Jazz Pharmaceuticals, Marinus Pharmaceuticals, Neurelis Inc., Radius Health and Supernus. Speaker’s bureau fees from Aquestive Therapeutics, BioMarin Pharmaceutical Inc., Eisai, Jazz Pharmaceuticals, LivaNova, Neurelis Inc., SK Life Sciences, Supernus, UCB and Zogenix.
Prof. Katarzyna Kotulska
The Children’s Memorial Health Institute, Warsaw, Poland
Prof. Katarzyna Kotulska is the professor and head of the Department of Neurology and Epileptology at The Children’s Memorial Health Institute, Warsaw, Poland. read more
Prof. Kotulska is a representative of Poland in the Board of Member States for European Reference Networks. Her clinical and basic research focuses mainly on rare diseases of the developing nervous system and epileptology. In 2009, Prof. Kotulska received the L’Oréal-UNESCO For Women in Science Award (Poland). She is a coordinator of two large non-commercial ongoing clinical trials that are investigating the safety and efficacy of rapamycin in preventive treatment in infants with TSC (ViRap study), and drug-resistant epilepsy associated with TSC (RaRE-TS study). Prof. Kotulska has authored over 160 scientific papers published in peer-reviewed journals and several book chapters.
Prof. Katarzyna Kotulska discloses: Grants/research support from Novartis (relationship terminated). Advisory board or panel fees from Biogen, GW Pharmaceuticals, Novartis, Roche and UCB.
Ms Lisa Moss
TSC Alliance, Silver Spring, MD, USA
Ms Lisa Moss is the mother of a patient with TSC and the vice president of Donor Relations at TSC Alliance, a charity dedicated to finding a cure for TSC while improving the lives of those affected. read more
Lisa oversees fundraising at TSC Alliance; her development team focuses on building relationships with private, corporate and industry donors while raising valuable resources through corporate sponsorships, grants, appeals and individual gifts. Since 2019, Lisa has been involved in cultivating and securing leadership gifts to underwrite the TSC Alliance’s research platform to provide increased funding to accelerate the development of new treatments.
Lisa was first introduced to the TSC Alliance in 2006 when her son, Evan, was diagnosed with TSC. The following year she began volunteering. From 2008 to 2012, Lisa served as co-chair of the TSC Alliance of Metropolitan DC. In 2012, Lisa established Art for a Cure and the first Step Forward to Cure TSC® National Walk in DC, which eventually led to her joining the TSC Alliance staff full time. In 2007, Lisa and her husband, Rob, co-founded SeizureTracker.com, a database-driven website that acts as a comprehensive seizure diary system and free resource for patients and families. Lisa is incredibly grateful for the guidance and support of TSC families and individuals. Her hope is for a better future for the TSC community and that she can repay that gratitude through her work at TSC Alliance.
Ms Lisa Moss has no interests/relationships or affiliations to disclose in relation to this activity.
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