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Joseph Samaha, Jim Dagher, Shayan Abdollah Zadegan

Huntington’s disease (HD) is a neurodegenerative disease inherited in an autosomal dominant manner. It is caused by an expansion of cytosine, adenine, guanine (CAG) repeats within the huntingtin (HTT) gene, which is located on chromosome 4. This pathological expansion of CAG repeats results in the production of a mutant huntingtin protein with an abnormally long polyglutamine […]

European Multiple Sclerosis Platform

European Multiple Sclerosis Platform
Phone: +32 (0)2 305 80 12
Web Address: www.emsp.org

The European Multiple Sclerosis Platform (EMSP) is a Pan-European umbrella organization with over 30 years of expertise.  They work together with our members and our partners to ensure that  the more than 1 million people living with MS in Europe, have a real voice in determining their own priorities. They rely on a growing network of 43 member organisations from 37 European countries.

The needs of the 1 million people with MS in Europe are the main focus of their advocacy and awareness-raising campaigns to influence European decision-makers and EU policy-makers. They gather data and provide knowledge and expertise to relevant stakeholders and encourage high quality research and the dissemination of excellent, evidence-based information on MS .

Their flagship projects aim to improve quality of life of people with Multiple Sclerosis, as well as to ensure that they receive high quality equitable treatment, care and can access employment.

EMSP is the only MS-specific organisation that can influence health and other EU policies. They have a history of collaboration with the European Commission and European Parliament, they are founding members of the European Patients’ Forum (EPF) and they work with the European Medicines Agency (EMA).

Learn more about EMSP here: http://www.emsp.org/

Or here: http://annualreport.emsp.org/

 

EMSP 2024 Annual Meetingclick here

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