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Amyotrophic lateral sclerosis (ALS) is characterized by the degeneration of both upper and lower motor neurons, which ultimately leads to muscle weakness, atrophy, spasticity and contractures.1 ALS typically manifests in the 50–60 years age range, although familial cases may present in late adolescence or early adulthood.2 The time from the first symptom to diagnosis is approximately 10–16 […]

Podcast: What’s it like managing your working life with Parkinson’s?

Parkinson's Life
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Published Online: Jul 18th 2019

Podcast produced by the European Parkinson’s Disease Association (EPDA) website Parkinson’s Life – the online lifestyle magazine offering a voice to the global Parkinson’s community, and is shared with kind authorisation of the EPDA. 

Designed to offer an uninterrupted space for people living with Parkinson’s, their podcasts bring together two people to talk openly and honestly about the realities of life with Parkinson’s – and to share ideas about living well with the condition.

Episode Three: “Parkinson’s and work”

In Episode Three, which was launched on 18 July 2019, Elisabeth Ildal (Denmark) and Gary Boyle (Ireland), who both live with young-onset Parkinson’s, discuss what it is like managing your working life with Parkinson’s and connect over their experiences of:

– telling employers about their diagnosis;
– navigating the workplace and explaining the condition to colleagues; and
– choosing whether to continue working or take a step back from a career.

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