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Pavel Burko, Ilias Miltiadis, Mahsa Alavi

Amyotrophic lateral sclerosis (ALS) is characterized by the degeneration of both upper and lower motor neurons, which ultimately leads to muscle weakness, atrophy, spasticity and contractures.1 ALS typically manifests in the 50–60 years age range, although familial cases may present in late adolescence or early adulthood.2 The time from the first symptom to diagnosis is approximately 10–16 […]

Podcast: What’s it like caring for a family member with Parkinson’s?

Parkinson's Life
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Published Online: Jun 20th 2019

Podcast produced by the European Parkinson’s Disease Association (EPDA) website Parkinson’s Life – the online lifestyle magazine offering a voice to the global Parkinson’s community, and is shared with kind authorisation of the EPDA. 

Designed to offer an uninterrupted space for people living with Parkinson’s, their podcasts bring together two people to talk openly and honestly about the realities of life with Parkinson’s – and to share ideas about living well with the condition.

Episode Two: “Caring for a family member with Parkinson’s”

In Episode Two, which was launched on 20 June 2019, Ola Larsson (Sweden) and Ivona Cudova (Czech Republic), who both care for a family member with Parkinson’s, came together to talk about how taking on the role of carer impacted their relationships, and why seeking support from people in a similar position is a necessity.

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