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Amyotrophic lateral sclerosis (ALS) is characterized by the degeneration of both upper and lower motor neurons, which ultimately leads to muscle weakness, atrophy, spasticity and contractures.1 ALS typically manifests in the 50–60 years age range, although familial cases may present in late adolescence or early adulthood.2 The time from the first symptom to diagnosis is approximately 10–16 […]

Christina Vaughan, AAN 2019 – Palliative care needs in the management of neurodegenerative diseases

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Published Online: May 29th 2019

Christina Vaughan (University of Colorado, Anschutz Medical Campus, Colorado, USA) talks to us about palliative care needs in the management of neurodegenerative diseases, including her research project studying specific needs in early onset dementia.

 

Questions

  1. What are the major palliative needs of patients with Parkinson’s disease (PD)? (0:04)
  2. What about early onset diseases (like dementia)? (2:33)
  3. What palliative interventions have proven useful in patients with PD? (4:23)
  4. What can be done to improve the quality of life of caregivers of people with neurodegenerative disease? (6:12)
  5. What are your highlights of the AAN 2019 meeting so far? (8:05)

 

Speaker disclosure: Christina Vaughan has nothing to disclose in relation to this video interview.

 

Filmed at the American Academy of Neurology (AAN) Annual Meeting, Philadelphia, USA, May 2019.

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