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Joseph Samaha, Jim Dagher, Shayan Abdollah Zadegan

Huntington’s disease (HD) is a neurodegenerative disease inherited in an autosomal dominant manner. It is caused by an expansion of cytosine, adenine, guanine (CAG) repeats within the huntingtin (HTT) gene, which is located on chromosome 4. This pathological expansion of CAG repeats results in the production of a mutant huntingtin protein with an abnormally long polyglutamine […]

Veronica Clark, Parkinson’s Europe: Presidential Update, and the Parkinson’s Manifesto for Europe

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Published Online: Dec 6th 2022

The European Parkinson’s Disease Association (EPDA) recently changed its name to Parkinson’s Europe. They are the only European Parkinson’s umbrella organisation and have been working with the global Parkinson’s community for nearly 30 years. As a leading voice for Parkinson’s in Europe, they provide trusted information; advance and share good practices; raise awareness and improve understanding of the condition; and facilitate research collaboration. In this touchNEUROLOGY interview, we caught up with Veronica Clark, President, Parkinson’s Europe, to discuss the recent name change, goals and initiatives for the next few years, and the major issues impacting the Parkinson’s community. We also discussed the Parkinson’s Manifesto for Europe that has been recently been launched. The manifesto aims to shine a light on what is important to people living with Parkinson’s disease and ensuring that their voices are heard and listened to. The manifesto is made up of 30 wishes that sit under 5 key areas.

Resources:

Questions:

  1. Why has the EPDA changed its name to Parkinson’s Europe? (0:11)
  2. Could you give us an overview of Parkinson’s Europe’s goals and activities? (1:17)
  3. What are the major issues facing the Parkinson’s community currently? (3:08)
  4. Could you tell us a little about the Parkinson’s Manifesto for Europe you are launching? (4:06)
  5. How will you share the manifesto with the wider community? (5:31)

Disclosures: Veronica Clark has nothing to disclose in relation to this video interview.

Support: Interview and filming supported by Touch Medical Media. Interview conducted by Katey Gabrysch.

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