Dravet Syndrome UK
Web Address: Dravet UK
Our mission is to bring hope to families living with Dravet Syndrome through support, education and medical research. Dravet Syndrome is a life-limiting neurological condition causing severe seizures and varying degrees of learning disabilities and other issues, such as autism, mobility problems, speech difficulties and feeding problems. Dravet Syndrome UK is the only charity dedicated to changing the lives of those affected by this devastating condition in the UK. We achieve this through our 3 aims:
• To support families affected by Dravet Syndrome emotionally, practically and financially.
• To raise awareness and understanding of Dravet Syndrome among medical professionals
• To fund medical research to increase understanding of Dravet Syndrome, improve its management, work towards better outcomes and to hopefully one day find a cure