Our mission is to bring hope to families living with Dravet Syndrome through support, education and medical research. Dravet Syndrome is a a rare, life-long and life-limiting neurological condition encompassing severe, difficult-to-control seizures, intellectual disability and a spectrum of associated conditions (comorbidities) which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, feeding and sleep. Dravet Syndrome UK is the only charity dedicated to changing the lives of those affected by this devastating condition in the UK.
We aim to:
1. support families affected by Dravet Syndrome emotionally, practically and financially,
2. raise awareness and understanding of Dravet Syndrome among medical professionals,
3. fund research to increase understanding of Dravet Syndrome, improve its management and work towards better outcomes for all those affected.
