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Amyotrophic lateral sclerosis (ALS) is characterized by the degeneration of both upper and lower motor neurons, which ultimately leads to muscle weakness, atrophy, spasticity and contractures.1 ALS typically manifests in the 50–60 years age range, although familial cases may present in late adolescence or early adulthood.2 The time from the first symptom to diagnosis is approximately 10–16 […]

Tony Marson, EAN 2019 – Improving epilepsy care and patient outcomes

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Published Online: Jul 4th 2019

We had an opportunity to catch up with EAN Programme Committee Chair Tony Marson (Liverpool, UK), who talked to us on the topic of the special session he moderated entitled: How to use ‘big data’ and digital technology to improve epilepsy care and patient outcomes.

Questions
1. What have we learned from audits about the costs of inadequately coordinated care in epilepsy? (0:04)
2. How can the use of ‘big data’ help neurologists in making point-of-care decisions? (1:54)
3. What are the most useful components of a ‘pathways of care’ approach in epilepsy services? (3:00)
4. What are the major barriers in implementing such approaches? (4:12)
5. Could you tell us a little about the European Brain Council (EBC) Value of Treatment of Epilepsy project? (4:36)

Speaker disclosure: UCB Pharma funded the UK audit discussed in this video interview.

Filmed at the 5th Congress of the European Academy of Neurology (EAN), Oslo, Norway, June 2019.

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