Dravet Syndrome (DS) is a rare neurological condition, beginning in infancy and lasting a lifetime. The impact and the constant care required for someone living with DS has on the patient and their family’s quality of life can be huge. touchNEUROLOGY are joined by Galia Wilson, Chair and Trustee of Dravet Syndrome UK (DSUK), a charity created in 2008 by a group of parents who came together looking for support, resources and information relating to the neurological condition. Galia Wilson discusses the huge impact that DS has on not only the person living with DS, but also their families, siblings, and caregivers.
Questions:
- How does Dravet syndrome impact the daily life of patients, and their families?
Resources:
- About Dravet Syndrome
- Support for Families
- Support for Healthcare Professionals
- DSUK Funding Medical Research
- Fundraising
- Further helpful resources are available here
Disclosures: Galia Wilson has nothing to disclose in relation to this video interview.
Support: Interview and filming supported by Touch Medical Media. Interview conducted by Katey Gabrysch.
View the latest Dravet syndrome and epilepsy content here
