Galia Wilson, Dravet Syndrome UK: DSUK Objectives, directions and support for families and people living with Dravet syndrome

Dravet Syndrome (DS) is a rare neurological condition, beginning in infancy and lasting a lifetime. touchNEUROLOGY were joined by Galia Wilson, Chair and Trustee of Dravet Syndrome UK (DSUK), a charity created in 2008 by a group of parents who came together looking for support, resources and information relating to the neurological condition. In this interview, Galia Wilson discusses the objectives and strategic directions of DSUK, upcoming events, and the support it can provide for people living with DS, caregivers and families.

Question:

1. Could you give us a brief overview of Dravet Syndrome UK (DSUK), its objectives, and strategic directions? (0:18)

Resources:

• About Dravet Syndrome
• Support for Families
• Support for Healthcare Professionals
• DSUK Funding Medical Research
• Fundraising
• Further helpful resources are available here

Disclosures: Galia Wilson has nothing to disclose in relation to this video interview.

Support: Interview and filming supported by Touch Medical Media. Interview conducted by Katey Gabrysch.

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