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Parkinson’s disease (PD) is a complex neurodegenerative condition that predominantly affects older people, with a rising prevalence worldwide.1,2 There are many on-going challenges and unmet needs in PD: difficulties in making an accurate diagnosis (particularly in the early stages of the disease), troubling side effects associated with the available pharmacological treatments, a lack of effective disease-modifying therapies […]

Galia Wilson, Dravet Syndrome UK: DSUK Objectives, directions and support for families and people living with Dravet syndrome

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Published Online: Jun 23rd 2022

Dravet Syndrome (DS) is a rare neurological condition, beginning in infancy and lasting a lifetime. touchNEUROLOGY were joined by Galia Wilson, Chair and Trustee of Dravet Syndrome UK (DSUK), a charity created in 2008 by a group of parents who came together looking for support, resources and information relating to the neurological condition. In this interview, Galia Wilson discusses the objectives and strategic directions of DSUK, upcoming events, and the support it can provide for people living with DS, caregivers and families.

Question:

  1. Could you give us a brief overview of Dravet Syndrome UK (DSUK), its objectives, and strategic directions? (0:18)

Resources:

Disclosures: Galia Wilson has nothing to disclose in relation to this video interview.

Support: Interview and filming supported by Touch Medical Media. Interview conducted by Katey Gabrysch.

View the latest Dravet syndrome and epilepsy content here

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