Dravet Syndrome (DS) is a rare neurological condition, beginning in infancy and lasting a lifetime. touchNEUROLOGY were joined by Galia Wilson, Chair and Trustee of Dravet Syndrome UK (DSUK), a charity created in 2008 by a group of parents who came together looking for support, resources and information relating to the neurological condition. Galia discusses unmet needs in the diagnosis and treatment of Dravet syndrome, and the educational needs that still remain for healthcare professionals
Question:
- What are the unmet needs in the diagnosis of Dravet syndrome? (0:18)
Resources:
- About Dravet Syndrome
- Support for Families
- Support for Healthcare Professionals
- DSUK Funding Medical Research
- Fundraising
- Further helpful resources are available here
Disclosures: Galia Wilson has nothing to disclose in relation to this video interview.
Support: Interview and filming supported by Touch Medical Media. Interview conducted by Katey Gabrysch.
View the latest Dravet syndrome and epilepsy content here
