In conjunction with the American Epilepsy Society (AES), we had the great pleasure of meeting with Barbara Jobst (Chair, Council of Education, American Epilepsy Society, USA) to discuss the Disrupting Disparities project which aims to improve outcomes for underserved people with epilepsy (PWE) by improving the epilepsy clinical knowledge of the non-specialist epilepsy care workforce, and by deepening understanding of social determinants of health and commitment to epilepsy self-management by the epilepsy specialist workforce. The project will launch in September 2021.
Useful resources:
- MEW Network: A team of people who care about people with epilepsy and their caregivers
- HOBSKOTCH: HOme-Based Self-management and COgnitive Training CHanges lives
- SMART: Self-Management for People with Epilepsy and a History of Negative Health Events
- PACES: The Program of Active Consumer Engagement in Self-management in epilepsy
- The Epilepsy Foundation
Questions:
- What are the major unmet needs in clinician education of epilepsy? (0:57)
- What are the objectives of the Disrupting Disparities project? (2:51)
- How will these objectives be achieved? (3:50)
Disclosures: Barbara Jobst has nothing to disclose in relation to this video.
Support: Interview and filming supported by Touch Medical Media. Interview conducted by Katey Gabrysch.
