Dravet Syndrome (DS) is a rare neurological condition, beginning in infancy and lasting a lifetime. touchNEUROLOGY were joined by Galia Wilson, Chair and Trustee of Dravet Syndrome UK (DSUK), a charity created in 2008 by a group of parents who came together looking for support, resources and information relating to the neurological condition. Galia discusses the different types of medical research DSUK support; working closely with world-renowned UK clinicians and research partners, including Great Ormond Street Children’s Hospital Charity, the Dravet Syndrome European Federation, Epilepsy Action and the Epilepsy Society.
Question:
- What types of medical research does DSUK support? (0:18)
Resources:
- About Dravet Syndrome
- Support for Families
- Support for Healthcare Professionals
- DSUK Funding Medical Research
- Fundraising
- Further helpful resources are available here
Disclosures: Galia Wilson has nothing to disclose in relation to this video interview.
Support: Interview and filming supported by Touch Medical Media. Interview conducted by Katey Gabrysch.
View the latest Dravet syndrome and epilepsy content here