Jackie Palace, Rare Disease Day 2022: Improving diagnosis and treatment of neuromyelitis optica spectrum disorder
Prof. Jackie Palace (Nuffield Department of Clinical Neurosciences, Oxford University, Oxford, UK) joins us for Rare Disease Day to discuss neuromyelitis optica spectrum disorder (NMOSD), how it differs from multiple sclerosis, and the major barriers patients face in diagnosis and treatment. She also discusses the use of multidisciplinary teams in providing support and advice to patients and their families.
Touch Medical Media are supporting Rare Disease Day (28 February 2022) to shine a light on healthcare inequalities for people living with Rare Diseases, focusing on patient quality of life and the difficulty of diagnosing patients early.
Questions:
- Could you explain how NMOSD is different from MS and its impact on daily life, lifestyle and health outcomes? (0:30)
- What are the major barriers to diagnosis and treatment for patients with NMOSD? (2:32)
- Why is prevention of relapse an important treatment goal for patients diagnosed with NMOSD? (5:41)
Disclosures: Jackie Palace has nothing to disclose in relation to this video.
Support: The production of this video was supported by Touch Medical Media.
Other content available in support of Rare Disease Day includes:
- Shekita Green: Living with neuromyelitis optica spectrum disorder (NMOSD) – A patient perspective
- Said Beydoun: Understanding myasthenia gravis and the impact on patients’ quality of life
- Megan Hunter: Living with myasthenia gravis – A journey to diagnosis
- Damara Ortiz: The impact of Pompe disease and the importance of newborn screening
- Ethan Crough: Living with achondroplasia – Celebrating diversity and increasing awareness
- Spero R Cataland: Acquired thrombotic thrombocytopenic purpura – Risks, complications and the impact on daily life
- Richard Keen: Rare bone diseases – Diagnosis, management and patient quality of life
